Living with galactosemia

Everyday Life

A child can live a normal life except for a couple disabilities if they don't catch the disorder early enough. The child's life is definitely still worth living as long as they're careful with their diet. If a strict diet isn't followed then their condition will progressively worsen.

This video shows the story of one family who's son was diagnosed with galactosemia and how it has affected their lives.

"Growing up, I would often have to sit and watch while everyone else ate the birthday cake, the ice cream, etc."

To read more from a teenage boy's living with galactosemia visit: http://www.teenink.com/hot_topics/health/